Spring is in the Air

I just realized how long it's been since I updated Brandon's Blog. I always thought that once we returned from China that I would keep it current and update regularly. Guess I was fooling myself. Brandon is great. Not visually but over all he's doing quite well. I would say visually we haven't seen much changes (if any) since the last update. I am disappointed in that aspect because I thought we would continue to see improvements for a year after being in China. However his bad days are less frequent than before. Before treatment he would have days where he couldn't see anything. He still has those days but it happens less often than before. He's still experiencing severe headache's and for that I'm a bit concerned. He has suffered from headaches for most of his life and they don't seem to be slowing down. We are thinking about taking him back to the neurologist but we know what he'll say. They want to check his cranial pressure by placing these bolt like things under his scalp in order to monitor the pressure for 48 hours. We really don't want to put Brandon through that but our options are limited. I'm sure we'll make a decision in the next few weeks. Other than that, Brandon is growing really fast. I think he's going through a growth spurt. He's looking forward to school being out next month and for his birthday in July. It's hard to believe he's going to be 9. Time really has been slipping by us. It still doesn't seem like it's been 8 months since we were in China. 8 MONTHS. Still doesn't seem possible.