Wednesday, August 27, 2008

9:31 pm - 19 days to go!!

Brandon had stem cell treatment #4 today. This one was easy since it was done through an IV. He was allowed to eat & drink up until treatment time. They had to do the IV in his foot which prevented him from walking for awhile. He was suppose to keep the IV until tomorrow but I convinced the Dr that there was no way he could go 24 hours without standing. He was doing really well so we were confident that they wouldn't need it later. After Brandon had the treatment, we were kicked out of our room for an hour while they waxed our floor. They woke us up early this morning to tell us to pick our stuff up off the floor & prepare to move our stuff outside in the hallway. It was a difficult day since several people had treatments today then to come back & find out that they have been evicted for awhile.... Everyone's opinion was that they should've done this on a non treatment day (Monday, Wednesday & Fridays are stem cell days). Last night when I saw the schedule, I noticed a change in his treatment. They had scheduled his treatment via IV instead of spinal. Since spinals are more effective, I was a bit upset. I told Kirshner that since treatment #2 was called off (but counted towards his total number of treatments) I didn't want him to have IV's. She said that it was too late to change this treatment but she would work something out. Then this morning when the Dr's came, they said that the spinal treatments were too risky for Brandon so they would only do IV's. That really left me concerned since they had said that the last spinal went fine & that he would have the rest of the treatments through his spine. After asking them a few questions, I told them that Kirshner had told me differently. They said they would speak to Kirshner & get back with us. This afternoon the Dr came in and said that there was some type of confusion this morning & they redid his schedule. NOW he will have a spinal on Monday the 1st. An IV on Friday, September 5th & a spinal on Wednesday, September 10th. Although he gets another IV, he does get an extra treatment. Well not an extra one but they will redo the one that was cancelled last week. We are extremely happy with the new schedule and we will be home the 15th. So now we're counting down the days - 19 days to go until we come home (and find a new refrigerator - apparently ours has died since we've been here) We got 2 new people in this week. They are adults - no playmates for Brandon but the new people are really nice so that will help make the time go by faster. The family that we really got close to will be leaving in the morning. We are extremely sad to see them go but happy for them. They saw wonderful improvements & we're excited that their child has a new life now with sight. Photo's: 1st - Stem Cells AKA "Yellow Gold" as it's called around here. 2nd - Brandon hanging out in the IV room while he receives the Yellow Gold. 3rd - Everyone's stuff out in the hallway. What a bad day to wax the floors!! 4th - Brandon hanging out in the day room while we wait to take control of our room again. 5th - What a wonderful view of Qingdao from the 8th floor kitchen window! I love to go in there just to look out of the window. A few of those buildings are lit up at night with lights that change colors and run up & down the sides of the buildings. Very pretty!

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